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class=\"screen-reader-text\">Advertisement<\/span> <\/div>\n<\/div>\n<p> <main id=\"main\" role=\"main\" tabindex=\"-1\"> <\/p>\n<div class=\"ad ad--top ad--top-mobile\">\n<div class=\"ad__inner\"> <span class=\"screen-reader-text\">Advertisement<\/span> <\/div>\n<\/div>\n<section id=\"stickybar\" class=\"stickybar stickybar--newsletter js-stickybar\" readability=\"0.82\"> <button class=\"stickybar__close js-stickybar-close\" aria-controls=\"stickybar\"> <svg class=\"icon icon--close\" width=\"21\" height=\"22\" viewBox=\"0 0 21 22\" fill=\"none\"><path d=\"m.822.518-.805.805L9.695 11 .017 20.678l.805.805 9.678-9.678 9.677 9.678.806-.805L11.305 11l9.678-9.677-.806-.805-9.677 9.677L.822.518Z\" fill=\"currentColor\" \/><\/svg> <span class=\"visually-hidden\">Close<\/span> <\/button> <\/section>\n<article class=\"single-article content has-grayscale-images\">\n<div class=\"single-article__container js-single-article-content\">\n<header class=\"single-article__header \" readability=\"24.246963562753\">\n<div class=\"single-article__header-content\" readability=\"30.194331983806\">\n<ul class=\"single-article__eyebrow\">\n<li class=\"single-article__category\"> <a class=\"single-article__category-link\" href=\"https:\/\/cyberscoop.com\/news\/government\/\"> <span>Government<\/span> <\/a> <\/li>\n<\/ul>\n<p> The case is the latest in a series of FTC enforcement actions focused on health data privacy and the first involving genetic information. <\/p>\n<\/p><\/div>\n<div class=\"single-article__cover-wrap\">\n<figure class=\"single-article__cover\"> <img data-recalc-dims=\"1\" fetchpriority=\"high\" width=\"640\" height=\"360\" src=\"https:\/\/i0.wp.com\/ddi.mohflo.net\/wp-content\/uploads\/2023\/06\/ftc-accuses-genetic-testing-company-of-exposing-sensitive-health-data.jpg?resize=640%2C360&ssl=1\" class=\"single-article__cover-image wp-post-image\" alt decoding=\"async\" srcset=\"https:\/\/ddi.mohflo.net\/wp-content\/uploads\/2023\/06\/ftc-accuses-genetic-testing-company-of-exposing-sensitive-health-data-1.jpg 1940w, https:\/\/ddi.mohflo.net\/wp-content\/uploads\/2023\/06\/ftc-accuses-genetic-testing-company-of-exposing-sensitive-health-data-1.jpg?resize=300,168 300w, https:\/\/ddi.mohflo.net\/wp-content\/uploads\/2023\/06\/ftc-accuses-genetic-testing-company-of-exposing-sensitive-health-data-1.jpg?resize=768,432 768w, https:\/\/ddi.mohflo.net\/wp-content\/uploads\/2023\/06\/ftc-accuses-genetic-testing-company-of-exposing-sensitive-health-data-1.jpg?resize=1024,576 1024w, https:\/\/ddi.mohflo.net\/wp-content\/uploads\/2023\/06\/ftc-accuses-genetic-testing-company-of-exposing-sensitive-health-data-1.jpg?resize=1536,864 1536w, https:\/\/ddi.mohflo.net\/wp-content\/uploads\/2023\/06\/ftc-accuses-genetic-testing-company-of-exposing-sensitive-health-data-1.jpg?resize=600,337 600w, https:\/\/ddi.mohflo.net\/wp-content\/uploads\/2023\/06\/ftc-accuses-genetic-testing-company-of-exposing-sensitive-health-data-1.jpg?resize=1200,675 1200w, https:\/\/ddi.mohflo.net\/wp-content\/uploads\/2023\/06\/ftc-accuses-genetic-testing-company-of-exposing-sensitive-health-data-1.jpg?resize=1500,843 1500w\" sizes=\"(max-width: 1200px) 100vw, 1200px\"> <\/figure>\n<\/p><\/div>\n<\/header>\n<div class=\"single-article__content\">\n<div class=\"single-article__content-inner has-drop-cap\"> <html readability=\"35.485254691689\"><body readability=\"72\"><\/p>\n<p>The Federal Trade Commission on Friday accused the genetic health testing firm 1health.io of failing to protect sensitive genetic and health data, the latest in a series of FTC enforcement actions focused on health data privacy and the first involving genetic information.<\/p>\n<p>The FTC alleges that the California-based 1health previously known as Vitagene, deceived customers about its privacy policy, retroactively changed that policy and misled customers about its process for deleting data. The company will pay $75,000 to the FTC for consumer refunds as part of a settlement with the agency.<\/p>\n<p>\u201cCompanies that try to change the rules of the game by re-writing their privacy policy are on notice,\u201d Samuel Levine, director of the FTC\u2019s Bureau of Consumer Protection, said in a statement. \u201cThe FTC Act prohibits companies from unilaterally applying material privacy policy changes to previously collected data.\u201d<\/p>\n<p>Vitagene\u2019s DNA test kits provide reports that include personal information such as ancestry and level of risk for certain health problems, such as high triglycerides and obesity. According to its website, 1health provides testing to corporate and government clients.<\/p>\n<div class=\"ad ad--inline_1 \">\n<div class=\"ad__inner\"> <span class=\"screen-reader-text\">Advertisement<\/span> <\/div>\n<\/div>\n<p>According to the complaint, Vitagene stored nearly 2,400 records belonging to at least 227 consumers in publicly accessible data buckets on Amazon Web Services, exposing sensitive consumer and raw genetic data, some of which was tied to consumers\u2019 names. Vitagene claimed that it did not store DNA results connected with identifying information.<\/p>\n<p>According to the FTC, Vitagene was warned three times that the unencrypted health and user data was publicly accessible but only fixed the issue and notified customers in 2019 after a security researcher shared their findings with the media.<\/p>\n<p>The FTC accused the company of deceiving customers by failing to follow through with its promises to customers that they could delete their data at any time. The company later began sharing customer information with third parties without notifying customers of the change. <\/p>\n<p>As part of the proposed order, 1health will be prohibited from sharing health data with third parties without obtaining affirmative customer consent. It must also implement a new security program to address the security concerns in the complaint and notify the FTC about any incidents of unauthorized disclosures of consumer health data. 1health will be required to destroy all DNA samples retained for more than 180 days.<\/p>\n<p>The proposed agreement will be made available for public comment for 30 days before the agency reaches a final settlement.<\/p>\n<div class=\"ad ad--inline_1 \">\n<div class=\"ad__inner\"> <span class=\"screen-reader-text\">Advertisement<\/span> <\/div>\n<\/div>\n<p>1health CEO Mehdi Maghsoodnia called the FTC investigation a \u201ccase of extraordinary government overreach.\u201d<\/p>\n<p>In a statement, Maghsoodnia said the company first learned in July 2019 that a \u201csmall number of customer files had been inadvertently stored in a publicly accessible location\u201d but that the company has no evidence they were \u201cimproperly accessed.\u201d<\/p>\n<p>\u201cIn response, the FTC launched an investigation which has now dragged on for nearly four years,\u201d Maghsoodnia said. \u201cUltimately, we disagree with many of the FTC\u2019s conclusions. But we look forward to finally putting this matter behind us.\u201d<\/p>\n<p><strong>Updated June 16, 2023:<\/strong> <em>To include comment from 1health.<\/em><\/p>\n<p><\/body> <\/p>\n<footer class=\"single-article__footer\">\n<div class=\"single-article__tags-container\">\n<h4 class=\"single-article__tags-title\">In This Story<\/h4>\n<\/p><\/div>\n<\/footer>\n<p> <\/html><\/div>\n<\/p><\/div>\n<\/p><\/div>\n<div class=\"single-article__ads js-single-article-sidebar\">\n<div class=\"ad ad--sidebar js-single-article-sidebar-5 ad--rightrail_1 \">\n<div class=\"ad__inner\"> <span class=\"screen-reader-text\">Advertisement<\/span> <\/div>\n<\/div>\n<div class=\"ad ad--sidebar js-single-article-sidebar-4 ad--rightrail_2 \">\n<div class=\"ad__inner\"> <span class=\"screen-reader-text\">Advertisement<\/span> <\/div>\n<\/div>\n<div class=\"ad ad--sidebar js-single-article-sidebar-3 ad--rightrail_3 \">\n<div class=\"ad__inner\"> <span class=\"screen-reader-text\">Advertisement<\/span> 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{"id":1435,"date":"2023-06-16T16:48:31","date_gmt":"2023-06-16T16:48:31","guid":{"rendered":"https:\/\/cyberscoop.com\/?p=74887"},"modified":"2023-06-16T16:48:31","modified_gmt":"2023-06-16T16:48:31","slug":"ftc-accuses-genetic-testing-company-of-exposing-sensitive-health-data","status":"publish","type":"post","link":"https:\/\/ddi.mohflo.net\/index.php\/2023\/06\/16\/ftc-accuses-genetic-testing-company-of-exposing-sensitive-health-data\/","title":{"rendered":"FTC accuses genetic testing company of exposing sensitive health data"},"content":{"rendered":"